Australians with motor neuron disease (MND) will now have improved access to essential information via a new website and national information line.
The new resource, MND Connect, was developed under the Information, Linkages and Capacity Building (ILC) program. It comprises a website and national information line, with advisors available to support people with MND, their families, carers, health professionals and service providers.
The website draws together a range of information and advice in one place making it easier for people to find consistent and accurate resources quickly. There are currently 789 Australians with MND accessing support through the NDIS.
“MND Connect will make it easier for people with MND to access the information they need, when they need it,”NDIS Minister Linda Reynolds said.
The grant funding also provides training and peer support for advisors who will be available to speak to people about their diagnosis, the support available and the next steps.
MND Australia has also adapted an end-of-life care resource, to create The MND Australia End of Life Guide. The guide provides practical information and support about planning ahead and making decisions about end-of-life care for people living with MND.
According to Social Services Minister Anne Ruston, this new one-stop-shop will help to build the knowledge and confidence of people with disability and improve their access to services. “The website draws together a range of information and advice in one place making it easier for people to find consistent and accurate resources quickly,” she said.
MND Connect can be accessed through: www.mndconnect.org.au and the MND Info Line on: 1800 777 175 Monday to Friday 9:00 am to 4:30 pm.
The End-of-Life Guide can be accessed on: www.mndaust.asn.au.
More information on support is available at the new Disability Gateway or by calling: 1800 643 787 Monday to Friday, 8am to 8pm AEST.